My name is Kevin Jordan and in 2008 at the age of 36 I was diagnosed with Motor Neuron Disease and given 3 to 5 years to live. Motor Neuron Disease takes away everything, but your mind. I am unable to walk or use my arms and my speech is inaudible. Ultimately, I will not be able to breath on my own and I will not be able to eat or drink. I will lose my ability to use any voluntary muscle and finally pass away. My brain and mind will however not be affected through this process. In affect imprisoned in my own body. There are many more people who are going or will be going through the very same process, taking a few months to many years. A very traumatic and expensive process.
After I could no longer work in 2012, I had to redirect my energy and passion elsewhere. We (my wife, Carla and I) became more involved in the Motor Neuron Disease Association of South Africa. We saw a real need to raise awareness of Motor Neuron Disease as well as raising funds for those who are less fortunate than me, who live with this disease. Throughout my life, I love helping others. I find it so rewarding. In view of this need, to help others, You and Me vs MND was born. The objectives were clear in our minds:
- Raising awareness of Motor Neuron Disease by informing as many people what Motor Neuron Disease is and what it does to one. Hoping that others will not go undiagnosed.
- Motivate and encourage people to make the most of their lives. Through my challenges, I want people to realise things are possible.
- Raise money for the Motor Neuron Disease Association of South Africa, so that they can provide much needed support to people living with Motor Neuron Disease. They have the reach to assist those living with Motor Neuron Disease. In the past 5 years we have raised over R500 000 for them thanks to the generosity of many people as well as hard work.
Our goal is to raise R200 000 for the Motor Neuron Disease Association of South Africa this year through events, raffles, donations etc. This will once again be paid over to them to assist the many people in South Africa who have this terrible disease, particularly for physical devices such as walking aids, wheelchairs, hoists, breathing equipment, alternative communication equipment etc . We host a number of events during the course of the year. Should you wish to attend any of these please follow us on Facebook or forward your email address and we will mail you.
You are welcome to contact the Motor Neuron Disease Association of South Africa, www.mnda.org.za, should you wish to verify who we are and our legitimacy.